Join this lively debate on the complex issue of consent within large-scale data platforms and research initiatives. This session will explore the most appropriate models to maximise benefits while ensuring ethical considerations. A stimulating and thought-provoking discussion for anyone invested in the future of AI and data in healthcare.
Sam Smith
Coordinator, MedConfidential
Sam Smith is a coordinator at medConfidential, which is an independent non-partisan organisation campaigning for confidentiality and consent in health and social care, which seeks to ensure that every flow of data into, across and out of the NHS and care system is consensual, safe, and transparent.
Founded in January 2013, medConfidential works with patients and medics, service users and care professionals; draws advice from a network of experts in the fields of health informatics, computer security, law/ethics and privacy; and believes there need be no conflict between good research, good ethics and good medical care.
Rafiah Patel
Chief Digital Ethics & Assurance Officer, SABP Digital, Surrey and Borders Partnership NHS FT
Rafiah is the Chief Digital Ethics and Assurance Officer at Surrey and Borders Partnership NHS Foundation Trust which supports individuals with mental health and/or learning needs. This is the first role of its kind in the NHS and has the remit of ensuring best practice in health and care by ensuring digital safety, privacy, security and accessibility. Through consideration of both legislative and moral duty, Rafiah is responsible for assuring that we have the highest quality of digital and data solutions for NHS staff and service users.
In addition to her NHS role, Rafiah is clinical doctoral fellows funded by the National Institute of Health Research who invest in innovative projects led by NHS clinicians. As an NIHR fellow, Rafiah utilises almost two decades of knowledge and experience as a Paediatric Speech and Language Therapist to co-design evidence-based digital therapies. The fellowship involves collaboration between St George’s University Hospital Foundation Trust and City, University of London.
Dr Martin Farrier
Chief Clinical Information Officer, Wrightington, Wigan and Leigh NHS FT
Will Navaie
Head of Ethics Operations, Genomics England
Chair: Dr Lia Ali
Member of CCIO Advisory Panel, Digital Health Networks & Clinical Adviser, NHS Transformation Directorate, NHS England
Dr Lia Ali is a doctor and digital health strategist with extensive experience across the spectrum of digital healthcare. She is passionate about ethics and safety by design, patient centred care and long term conditions including mental health and have particular interests in integrated care and medical education.
She believes that delivery of exemplary healthcare requires a holistic, biopsychosocial, service design approach. Lia has done this via transformation roles in the NHS, charities & for-profit sector.
Dr Lia Ali, Dr Martin Farrier, Rafiah Patel, Sam Smith, Will Navaie
